Although awareness of the condition is
increasing, there are still only a few doctors who are familiar with the condition.
A good doctor will honestly tell you so.
To which doctor?
You suspect you have PGAD. The first
appointment with a doctor is then generally your GP. For both you and your doctor, it would be nice if you come well prepared.
Give your GP the opportunity to properly interpret your symptoms. Due to knowledge gaps, an incorrect diagnosis is easily made.
And no one is helped...
OK, how do I prepare?
I suggest you print this
page out and give it to your doctor a week
or so before your appointment. Women who have done this before, were never rejected by doctors and have always been taken seriously.
This also gives your doctor an opportunity to work with you and plan next steps.
Who - What - Where?
One day you're suddenly surprised by tingling, an
itchy feeling between your legs. First, you have no idea of what's happening to you. Maybe you experience these sensations between your
legs initially a welcome gift. But when the gift never stops giving and imposes on you 24/7, yes... then you start to panic.
"What's wrong with me, where does this come from?" You have all kinds of ideas. You can hardly concentrate on other things.
Your normal daily routine is severely disrupted. You associate this feeling with sex, it feels exactly the same. You constantly feel
like you have to masturbate or have sexual intercourse, but that feeling is only between your legs and not at all in your head!
You're not thinking of sex at all! ! Even so, that all-consuming feeling ruthlessly overwhelms your body, and your spirit!
You don't understand and would really like to talk about it. But who do you tell something so bizarre? To your husband, your best
friend or a family member? Maybe you consider going to your doctor but are afraid of his/her reaction.
If only it were a gigantic green pimple on your nose, or something like that. Such a thing is visible and everyone will understand
that it bothers you. Your doctor would give you a pill or a cream and it would soon be gone. But you don't have a gigantic green pimple
and you're ashamed. You hope it goes away by itself, then you would never have to talk about it, that would be ideal. But the symptoms don't
go away, and the impact on your daily life gets more severe. You're getting desparate...
Long live the Internet!!
Somehow you ended up on this website. You read that you're not the only one with these mysterious symptoms. You have a physical
condition and that condition has a name! Multiple names even...
Restless Genital Syndrome (ReGS)
Persistent Genital Arousal Disorder (PGAD)
Persistent Sexual Arousal Syndrome (PSAS)
As the title of this page indicates, this page is dedicated to the many questions you undoubtedly have. You won't find an answer to
all your questions here right away. See this page as a kind of first aid...
... Everything is still new for you and getting overwhelmed
by information can only be confusing. KEEP CALM and don't read every word on this website in one sitting!
Don't let them tell you otherwise!
Nonsense, UTTER nonsense!!
The condition has absolutely nothing to do with the above.
If a doctor tries to tell you otherwise; get the hell out of there!!
PGAD is NOT in your mind!! It's between YOUR LEGS!
Don't let him tell you otherwise!
print them and take them along to your doctor or specialist.
An ignorant doctor can be potentially dangerous to your physical and emotional health.
These are a few popular medicines which are regularly prescribed in large doses and often in combination...
...Without any basis in knowledge or in need!!
DON'T BE ASHAMED
You did not ask for this
It has nothing to do with sex
PGAD is a neuropathy!
Share with fellow sufferers
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Why is this happening to me!
Women generally have a tendency to put 'the blame' on them themselves.
Especially with this condition, that certainly is the case.
Masturbation, exciting toys, games with your husband or boyfriend: sex is still surrounded by a degree of taboo.
Women with PGAD often wonder whether their sexual past could have contributed to the development of their condition.
Particularly older women, or women from a religous background, often struggle with this question. They sometimes have the
idea that the condition is the effect of their sexual behavior in the past.
That is why feelings of guilt and shame often become symptoms that accompany the disease.
Why one person gets PGAD/ReGS and the other doesn't: I don't know, no one knows. There are no indications whatsoever,
that PGAD could be an effect from a certain sex life.
In fact, many women with ReGS led a relatively chaste life and still developed the condition.
PGAD happened to you, like all other illnesses can happen to anyone.
By letting the 'why me question' go,
you can get rid of the other symptoms; the unnecessary and all-consuming symptoms of 'shame and guilt'. And believe me... that's a HUGE relief!